Here are some useful links to websites you may wish to visit:

Contact a family 

https://www.contact.org.uk/

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Minicom

General e-mail: info@cafamily.org.uk

020 7608 8702

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DCAction

https://dcaction.org

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Team Telomere 

https://teamtelomere.org/

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Anthony Nolan website information

 https://www.anthonynolan.org/